Wednesday, May 25, 2011

One Year Later

One year ago today, on May 25, 2010, Dr. Barnhardt told me Ray had cancer.
It was 7 o'clock in the morning.
Ray and I had been up all night in the ER because Ray had been throwing up and was in severe pain. The Riverton hospital ER did an X-ray and saw enlarged bowels.
So they had him drink the contrast over an hour and then did a CT scan at about 4 am.
At 5:30 am the ER doctor came into the room and very calmly explained that Ray indeed had a large blockage and that I should drive immediately to Primary Children's Medical Center to have them look at it.
I will always be grateful to that doctor.
He knew when he saw the scan that Ray had cancer.
Rather than telling me the news himself and then sending me off in my car to drive up to the hospital, he just told me it was a "blockage" and said, "Don't go home. Don't stop anywhere, go directly to the ER and they will be waiting for you."

Oddly, the drive there was peaceful.
The morning was very still and the sun wasn't up yet, but was casting cold blue light across the sky.
The roads were virtually empty and Ray slept quietly in the seat next to me as we drove.
Once we got to the ER, they had a room ready for us, but the nurses kept saying, "Dr. Barnhardt will talk to you." They told me that Dr. Barnhardt was a surgeon, so the whole time I was feeling so sad for Ray that he had kinked intestines or a blockage or something and that he may need surgery.
Around 7 am Dr. Barnhardt came in, examined Ray, turned the computer screen to me, so Ray couldn't see it, and pulled up the scan on the computer.
He showed me Rays heart, kidneys, etc, and then suddenly there was this huge black circle.
I said, "What is that?"
He said, "It's a tumor."
My heart started racing and I'll never forget I said, "Is it...(and I looked at Ray who was looking at me and I couldn't say the word, so I said)...is it the worst case scenario?"
Dr. Barnhardt said, "Yes."

The strange thing to me now, as I look back is that I never EVER imagined my child would have cancer. I always assume the worst for myself and for other adults when they are sick, but even throughout Ray's pain, the X-rays, the news that he had a blockage...I never once even had the thought that he could have cancer.
I mean....kids don't get cancer...right?

It was a huge shock. The next few days were very scary and as I think about them I can still feel the shock and fear and sadness that we experienced.
Ray went from being a normal 6 yr old boy with a stomach ache, to 10 hours later, lying in a bed in the cancer unit.
Dr. Barnhardt did the surgery on the evening of May 25th and took out a grapefruit size tumor, leaving many smaller ones. They told us it was unique to get a lymphoma tumor that big, and that pathology would be happy to study it because usually they just treat lymphoma with chemo and don't remove the tumors.
But since Ray's were so big, one of them got enmeshed with his intestines.
In fact, the tumors were growing so fast, they told us that if we had waited even a week to bring him in, he could have died.

How do you even process news like that about your child?

I have so much more in my heart about this, but for now all I will say is this...Ray survived.
He fought cancer and won and is doing great. It was a bad year, but now, he is going to be alright. It challenged us all and we had so much help from so many people. I will always be so grateful to our families and neighbors and friends who took care of our other children, our meals, our home, our bills, our sanity...everything else in our lives, so we could be with Ray in the hospital.

I am grateful for Ray. He did it. He is a great boy and I am so lucky to be his mother.
He lived. And I love him.


This was the day Ray lost his hair.

Did having cancer affect Ray?
Well, he doesn't talk too much about it, but this is a picture of the wall above Ray's bed today. He hung these up himself without telling me (or asking me I might add).
The bell on the left is the Make-a-Wish bell he got at Christmas time that says that every time it rings a prayer is sent to heaven that his cancer would be cured.
The middle one is a native American necklace that my sister Jojo and her son gave Ray. It is supposed to give you strength and courage when you wear it.
And the medal is the Ragnar Relay medal from my friend Somer, who organized her Ragnar team to be called Team Kitchy, in honor of Ray, and they ran to raise money for Ray. She ran a great race and finished, then gave her medal to Ray to encourage him to finish his race.
These are the things my 7 yr old boy has on his wall.

So yes, I think the past year has affected Ray in ways both big and small.
A few weeks ago I asked Ray what he may have learned from having cancer, he thought for a moment and then said, "To be brave."

Saturday, May 21, 2011

Air and Space Museum

I know I am a month behind, but I still wanted to post these photos from our trip to San Diego. Even though our time on the Midway was amazing, the Air and Space Museum was collectively our favorite. They have all the cool old restored planes, helicopters, and jets. They have a brand new space exhibit where you get the idea of what it's like to live on a space shuttle. Here are some of the highlights of our day.


Ammon in the helicopter.

This man was a helicopter operator on the USS Midway and now is the boss over donations to the museum. He allowed us to go down into the plane restoration garage in the basement and showed Ray how the planes are restored. (It is the best restoration shop in the nation.)

This is the Pilot and the museum curator standing watching Ray. They gave Ray a real panel that they were working on. They showed him what to do and then put him to work. He sat there working on the panel for about 30 minutes...in complete boy heaven...and when he was done, they said that once the plane is finished his name will be printed on the plaque of those people who restored the plane! Very cool!!


Another shot of our busy airplane mechanic!


This is the ejector seat of the plane Ray helped restore.


Another shot of the plane they are working on.



Not only were they cool to Ray here, but they gave all the kids backpacks with souveniers, books, treats, toys, etc. We were treated to a fabulous luncheon of Ray's favorite foods...tacos and lasagna...and were given a very kid friendly tour by a wonderful docier, Vern.


Pilot Ammon.


It was such a great day. Thanks again to Make-A-Wish for setting it up and big thank you to everyone at the Air and Space Museum in San Diego.

Monday, April 11, 2011

Rays Trip: The USS Midway

So I am finally at the actual day of the aircraft carrier. We visited the USS Midway and got a special VIP tour of everything the ship has to offer. We got free rides on all the flight simulators, free entry for an entire year, free souvenirs, free lunch, and a special secret tour of parts of the ship not normally shown to the public.

We were there for six hours! And Ray was engaged and interested the entire time! He truly truly loves these ships and the airplanes. He was so cute and in fact we loved it so much, we went back a few days later and spent another two hours there! Here are the photos from that day.

Captain Phil was a pilot on two different air craft carriers and was our guide for the day.

Ray sitting on deck in the very plane that Captain Phil flew!

Ray steering the ship.

Solomon on the flight deck! They took Ray up to the tower part and had him raise a flag over the ship. Later they took it down and gave it to him to keep. After we got home he got an official certificate in the mail stating that on that particular day the American Flag was raised over the USS Midway by Ray Sanchez. It was cool.
Solomon thought the giant anchor chain was pretty cool.


In fact, we all did!



The kids and I were fascinated that the enlisted men had to sleep in such tight bunk beds. It was really small and dark and cramped and noisy!! Not fun.


This sign was posted right at the entrance that day so every guest (they had 2500 visitors that day) got to see Ray's name and wonder who he was and why he was special!!


Shannan, Captain Phil, Joe, Solomon, Ray and Ruby in front of the aircraft carrier. It is four stories high and forever long. It was intimidating but also really really cool. I learned so much about stuff I never would have thought about. I am grateful that Ray has a different interests than I do as his mom, you know? We can learn so much from our kids if we just let them be who they are. It was a very satisfying and educational experience for our whole family.


Same group only with Charles the ship's engineer. Where was Ammon you ask??? Well our two year terror never would have survived six hours on the ship!
We were rescued by no joke, an angel that day! That very morning my neighbor Katy and I exchanged phone calls, she called her cousin in San Diego, the cousin jumped in her car, drove an hour and met us at the museum. She looked safe and trustworthy and came highly recommended by my neighbor...so we just put Ammon in her car and watched a perfect stranger drive away with our baby. It was not easy let me tell you!! But she was awesome and Ammon played like a superstar with her kids all day at the park and her house and was totally happy. And we had a safe and enjoyable day on the ship without having to shout "Ammon Alert! Ammon Alert!" every five minutes like we normally do.

Thank you Katy and your cousin! You both really saved us! It made me grateful for the church and the connections we have through Relief Society! We were lucky.


Thank you Make-A-Wish for granting such a wonderful wish!

Sunday, April 3, 2011

Ray's Trip The Beach

This was a REAL angry bird that terrified the children on the beach. It's hard to see but in his beak is one of our sandwich wrappers which he dug under a towel and through a bag to get to. We actually thought it was hilarious! The water was a little cold, but as always the waves are so much fun to play in. Here's Ruby, Shannan, and Solomon in the back.
Ray especially like the feeling of the sand moving under your feet when the wave would pull back to the ocean. He called it surfing!


This was at the Children's Beach in La Jolla. Where Seals have completely taken over the beach. It was fun to see them in their natural environment. On one side of this walkway the waves would crash up and get us wet...


...and on the other side was the beach so you could see the seals close up. We all enjoyed this beach even though both Ray and Ruby got drenched! Ammon like the seals but kept asking if they were dead. I guess they do look kind of dead...evidentally they just love sun bathing!



Ray's Wish Trip

We went to San Diego last week for Ray's Make-a-Wish Trip. From start to finish it was a perfect trip, and I do believe Ray's wish really did come true. Tonight I am just posting a few pictures. I accidentally posted them in the wrong order but I am too tired to fix it.

This is us arriving at the San Diego Airport. There was a representative from the San Diego Make-a-Wish that was there to greet us with this cute sign. He led us to our rental car, which was paid for, and then we followed him to our hotel on Mission Beach. Which was beautiful and also paid for!


This was the cool Make-a-Wish kid getting on the plane. The stewardess gave our kids free packs of M&M's and wing pins. All the kids were awesome on the flight. Ammon kept saying "Clouds!" Solomon spent most of the time eating the snacks and sodas, and Ray and Ruby played Angry Birds! It was pretty easy!

A shuttle picked us up at home so we didn't even have to worry about driving or parking at the airport.

I bought everyone their own suitcase to check through, which they all loved. And then each child had fun packing their own back pack or carryon with toys and books. They are just so cute! And were so excited! I won't post a million pictures but I promise there will be more to come!

Monday, March 21, 2011

I Heart Yoga


I am posting these pictures on my blog with the sole purpose of convincing my parents that I actually do yoga. I have been practicing yoga for 10 years and teaching for 8 years. And yet somehow I still have the impression that my parents think I go in there and do a little breathing, a little stretching, and call it good! So just like my four kids say to me 20 times a day, I am saying, "Mom...Dad....watch me!!" :)

I did these photos to update my Jo-Sha Wipes website. The other two models, Aaron and Patti, are my friends and fellow teachers at Breathe Yoga Studio in Daybreak. For more visit http://www.joshawipes.com/












Sunday, March 6, 2011

Rays Wish coming true

We got word from the Make-A-Wish Foundation about Ray's wish. In a few weeks they are sending us to go visit one of these

http://www.youtube.com/watch?v=wLPOTdG8vlc

We'll also have the opportunity to visit San Diego Zoo, Lego Land, Sea World, and some other fun attractions. We are beyond excited! Evidently everyone at Make-A-Wish has had a blast planning this wish because it is so unique. Way to go Ray!!

Contrary to popular belief, every child in the cancer ward is nominated for a wish. The Make-A-Wish Foundation grants wishes to children who are diagnosed with life threatening conditions. While some of these children are terminal, the goal of the foundation is to restore hope to children and their families and hopefully see the child recover and live!! I only mention this because a few people have asked me if Ray was deserving of a wish because he is in remission! In other words, does he deserve a wish even though he's not going to die?

Think of this...Ray had chemotherapy drugs injected into his spine 13 times last summer. Ray called them back pokes but they were like a spinal tap. 13 of them. They had to put him to sleep each time using the same drug that killed Michael Jackson. Once they couldn't get him to wake up properly and every doctor came running to his recovery bed to "revive" him. Each time he had a back poke he had to fast through breakfast and lunch (ever been around a hungry child???) and each time he would return to the room, order something to eat, and then because of the chemotherapy coursing through his body he would either throw it up, or feel too sick to eat it.

That is just one of the many lovely memories we have from Ray's treatment.

So...think of that....and then ask me again if Ray deserves to go to California and see a boat.

Thursday, February 10, 2011

Taking it for granted

The other day I was talking to a friend who was wondering if I hated living in Utah so much (what I am always complaining about, especially during the winter) where do I WANT to live? Believe me, I have many other preferences. But that conversation is not the point of this post.

Yesterday morning as I was driving my kids to school the morning had dawned clear and bright. I could actually see the mountains instead of the thick grey smog I usually see. The mountains were so blue and snowy white. And so huge! I felt they were literally looming infront of me like a big over-protective brother. Like someone I love but often overlook and take for granted. It almost brought tears to my eyes...but the noise of my kids fighting over who got to choose the next song kept me from getting too carried away in the moment.

Utah is a beautiful place.

I don't ski, I don't hike, I don't like camping, I don't rock climb, I don't fish, I don't snowboard....geez...maybe the real loser in this situation isn't Utah, but myself.

Tuesday, January 11, 2011

The Nutty Nutcracker

I have mentioned this before but my family has a tradition of seeing The Nutcracker at Ballet West every Christmas. It is something we look forward to all year. I start playing the CD around July and by December the kids are excited and familiar with the music. If you have never been GO! Ballet West does an amazing job, and thanks to my father and brothers who have been or are sponsors, I have been able to meet many of the dancers over the years.

This year my awesome brother Ron invited us all to the Nutty Nutcracker. This is the third year Ballet West has done this and it was so hilarious! This years theme was the movies, so many of the dancers were dressed as movie characters. Fx: Clara was Dorothy, the Nutcracker was Luke Skywalker, the Mouse King was Darth Vadar, and the Sugar Plum fairy and her Cavalier were James Bond and a the ultimate Bond girl. It was so funny and clever. After seeing the ballet so many times, my brothers and sisters who were there totally enjoyed seeing the dancers be so funny. It kept all the children totally engaged and they laughed and laughed (sometimes really loudly) throughout.

Ray and boy cousins before! I think WE may have been Nuttier than the ballet!:)


Shannan and Shannan.


Ruby and girl cousins. I LOVE this picture!

Anyway, I think my brother had the right idea about this ballet...that we want our kids to grow up loving the ballet as much as we did. And performances like this definitely help get them excited about it. Thanks Ron!

Sunday, January 2, 2011

I am a Reader, 2010

At the end of 2009 I declared myself a reader because I had read 37 books. In 2010 I surpassed that number by reading 41 books. That's a book every week 1/2 but it was easy because I love to read. Here are the details.
In 2010 I read:

41 books
12 Yoga Journal Magazines
8 Ensigns
52 US Weekly Magazines (what can I say it comes free to my PO Box)
25 People Magazines
100's of children's books
plus parts of the Old Testament and the Book of Mormon

Somehow I managed to read that much AND watch a ton of TV and movies. It's no wonder I never have any clean laundry or any friends!

Here are 10 favorite books that I read this year.
10. The Miraculous Journey of Edward Tulane, by Kate DiCamillo
9. The Art of Losing, by Rebecca Connell
8. The Cedar Post, by Jack Rose
7. Three Cups of Tea, by Greg Mortenson
6. The Trouble With Poetry, by Billy Collins
5. The Water and The Blood, by Nancy Turner
4. Half Broke Horse, by Jeannette Walls
3. The Glass Castle, by Jeannette Walls
2. Selected Poems of Edna St. Vincent Millay

And the best book I read all year was.....


1.Anthology of Robert Frost's Poems, by Louis Untermeyer

I knew very little about Robert Frost other than that he was considered one of the greatest American poets. I read this collection and found that I loved, related to, and understood almost every poem I read....and you would too! He was truly talented and had a special gift for capturing those feelings and moments that make our life meaningful, happy, or sad.

If you've never read a Robert Frost poem, click here and read Love and a Question, where Frost tells of a newlywed couple on their wedding night, interrupted by a stranger who knocks at the door and requests shelter from the storm. Through the groom, Frost asks the question, how much does God require of us?

The worst books I read this year were
Mockingjay
and
Uglies

I have nothing against it, I just really don't enjoy predictable, futuristic Juvi-Lit.


I learned a lot from all the books I read in 2010, and I look forward to a new year of great reading!

Tuesday, December 28, 2010

Shannan finishes the year...

End of the year news for Shannan:

Shannan spends many nights here....


...infront of the blasted computer either writing, blogging, reading your blogs, or ACTUALLY working on Jo-Sha Wipes. She took full control back from Joe of Jo-Sha Wipes this year and hired the most amazing employee to do shipping (Terrie) and is enjoying feeling like a small business owner again. Jo-Sha Wipes has been in business for 7 years now, and is incredibly, and against all odds, still doing great!

She enjoys everything about her life as a mother except for the messes. If her children would just stop spilling, dumping, or breaking things, she would be overjoyed!

She is beyond grateful for the support and love that was given this year while Ray went through chemotherapy. She is just now feeling the true depth of the fear, love, pain, gratitude, and heartache that come with having a child with cancer. There have been frequent tears recently to say the least and again she says THANK YOU to everyone who wrote, emailed, called, texted, visited, babysat, cooked, cleaned, cried, prayed, worried, hugged, cared, and thought of her family this year.


Shannan was happy to get a new popcorn pan for Christmas and is looking forward to more reading, exercising, and healthy kids in 2011.

Ammon finishes the year...

End of the year news for Ammon:
Ammon survives another day, day after day, despite his many climbs on the counters, up the Christmas tree, slides down the stairs, fingers in the sockets, hands in the oven, etc. etc. It takes an army of guardian angels just to keep this kid from injuring himself.
He plays hard and he sleeps hard! Ammon still adores his "beenty" but is only allowed to have it during naps or rest time. He can often be found sneaking into moms bedroom to lie on the bed during the day just so he can suck on the darn thing.

Ammon gets caught in the act of taking aim and throwing any toy at the other kids many times during the day. He remains the only two year old his mother knows who can make 7 and 5 yr olds cry.

Although he is a terror, Ammon makes his family laugh and is quick to hug and kiss you. He is affectionately called Gags, Googs, Goose, Baby Goose, and The Googer by his family and can often be found dancing to the title music of Go! Diego Go!




Ammon was excited to get his own basketball for Christmas and is happy to be finishing the year with his mom and dad wrapped firmly around his adorable little finger.


Thursday, December 23, 2010

Solomon finishes the year....

End of the year news for Solomon:

Solomon enjoys his first train ride on the Polar Express and asks Santa to bring him a Superman watch.

He completes his first "semester" of Joy-School with mom, Ammon, and cousin B and learns his ABC's and how to make a bird nest. He spends most of his free time dressing like a super hero and singing silly loud songs.
He makes regular phone calls to his family back east and speaks with his half sister for the first time. Shy smiles and jumping around usually follow.

Solomon finally learns to try one bite of the dinner mom fixes and expands his meals to include more than Ramen noodles and cheese.


Solomon is looking forward to getting more superhero costumes for Christmas. He has the most darling face and tender heart, and is happy to be ending the year wearing big boy unders.